Friday, January 22, 2010

 Food For Thought

For some reason or another, Dominic and I have been watching many different shows on obesity.  It's sad and frustrating at the same time to watch.  I do not like to think of American's as gluttons or as lazy people because of course I am American.  However, it is slowly starting to look that way for many of us.  Why is this?  Two reasons, convenience and laziness.  Things are becoming easier for us, which means people do less physical required activity and have the luxury of having jobs which come with the convenience of computers, machines, automation, and so on.  Because technology has advanced so much that most people enjoy themselves every night in front of satellite TV or playing a simple video game could be a contributing factor in what causes American obesity to rise.  The reason that most families and people eat out at restaurants or buy pre-cooked foods is simply because it is a convenience that allows more time for other things.  People can be too busy with work, school, and family matters, that cooking up a home-made dinner sometimes seem like a hassle or not an option.  The problem with eating out is you just don't know EVERYTHING that is being put into your food.  It's most likely loaded up with butter. Sure it tastes good.  Most things that do aren't healthy for you. 


This being said, there are three types of obese Americans in my opinion.  Those people that may have a medical problem that contributes to their obesity.  Those who may not have the means to eat healthy and look for the bargain.  And lets not forget those that are just plain lazy and are completely to blame for their own "fatness."  For those people I hold no sympathy.

But who's really to blame?  Well, in my opinion both the consumer and the industry.  However my bigger problem is with the industry.  Clearly we live in a consumer-driven society. ... Their purpose is to get you to do something. When you have that much money to market and with that kind of advertising budget, clearly you’re going to have influence over people’s decisions.  I think the real problem involves companies offering  "weapons of mass consumption."  It is tough to resist, and people want value. I want value.  Blame the industry or the consumer. I don’t care. We just have to reach a solution. It’s time for new rules.  I want to be able to drive-thru (not that it happens often in this household) or go to the movies and upon ordering a medium Coke...GET a medium Coke.  NOT a medium, over-sized, larger than life, 32oz, medium Coke.



OH...THE KIDS.  Let's not forget to talk about our kids.  Childhood obesity is a major problem in America as well.  Simple answer as to why is simply T.V.  Too much time in front of the "boob tube."  I personally never remember watching very much television growing up.  I can hardly name a favorite childhood television program of mine.  WE played outside, rode our bikes and ALWAYS ate home-cooked meals. Studies indicate that overweight children are not necessarily overeaters.  Sometimes they just eat and drink too much of the wrong things.  Eating a small bag of potato chips each day, for some youngsters, can lead to a half pound a week weight gain.  That may not seem like much in the grand scheme of things, but it can add up to two pounds a month or 24 pounds a year!  According to some reports, teenagers drink almost 65 gallons of soft drinks a year.  When you add the mountains of fast-food meals and high-fat snacks to these high sugar beverages, it’s not too hard to identify what behaviors are contributing to the problem. Why don't we limit these options for our children.  Encourage less video games and more outside playing time.

It's an epidemic people.  But before we judge, let's help educate and encourage and enable those who need the help less.  The irony for me in all of this, is that I graduated college with a degree in Marketing and Advertising.   I love every aspect of the field yet often find myself disgusted with how "in your face" it can be...That being said from a consumers point of view of course.

Wednesday, January 20, 2010

Kady Update

Just in case you were wondering my thought process now days on the whole liquid diet thing, I'm gonna share.

Plan A)
I decided I would try and wean her into the formula again.  That hasn't worked a bit.  I HONESTLY tried...seriously.  Tomorrow I will pick up samples of a different brand of "special" formula and some flavor packets from the doctor and give those a try over the next few weeks.

In case plan A doesn't work, which I'm less than confident it will...

Plan B)
Call Kady's doctor and request to put her on the meds.  I believe it's some type of steroid and by no means is a permanent solution, nor do I/we want it to be.  In 4 months I will try the liquid diet again allowing at least 4-6 weeks for her to be on it before re-introducing solid food into her diet.  In approximately 5 months (from now) when I begin introducing solid foods into Zoe's diet, hopefully Kadence will have fulfilled the 4-6week minimum liquid diet requirement and I can introduce foods to them simultaneously.  I'm hoping I can make a fun game out of it for Kady or maybe she'll see that Zoe only drinks and eats the same foods she does and will want to mimic her...GOD willing.

In case plan B doesn't work...

Plan C)
Keep Kady on the meds until she's 3 (one year from now) and reevaluate the situation.  Maybe, hopefully, possibly she'll have grown out of it (I'm less than optimistic) and if not, we can try the liquid diet again at that point.  Maybe they'll have figured out a better way to get the answer's they need given Eosinophilic Esophagitis has only been diagnosed for the past 10yrs which is not long when speaking medically.

Plan D)
Somewhere in the midst of plans A, B and C, I'll be researching holistic doctors and naturopath's here in Vegas to take Kadence to.  It's worth a shot right?  SHOOT....at this point, I'll take her to a psychic. What's the worst that could happen?  Okay...maybe that's grasping too much for straws at this point.  No psychic, FOR NOW!

Sorry to sound like such a bummer these days on this subject.  I'm usually not such a pessimist.  I guess my frustrations are getting the best of me.  AGAIN...I'm up for any advice, thoughts, opinions, etc....  If you've got them, please share.

Tuesday, January 19, 2010

 IT'S THAT TIME OF YEAR AGAIN
http://www.cff.org/great_strides/AshleyGuinto5877

If you know me or my family then you know just how much this means to us!!  After losing my nephew to Cystic Fibrosis this last March of 2009 and finding out for the first time that CF is hereditary and runs in my family, we have become  huge supporters of the CFF (cystic fibrosis foundation).

Last year I found the GREAT STRIDES walk and on short notice with the help of many of my friends and family, we were able to raise a good amount of money and had a great turnout for the walk.  I don't think those people will ever know just how much it meant to me to have their support.

I have a girlfriend who is a Manager at one of the Starbucks here in town. They have offered to match whatever donations Team Ethan brings in this year.  Pretty amazing if you ask me.  It's hard for me to talk about without getting teary eyed.  I know how rough this year and the past couple have been on many people.  Dominic and I included.  If donating isn't an option, that's okay.  Supporting the CFF doesn't have to be about money.  Like mentioned before, just showing support by participating in the walk (which is free) and helping raise awareness for the CFF is more than enough.

Please help Team Ethan  be as successful as it can be this year.  My family will be walking here in Las Vegas on April 17th, Honolulu Hawaii on May 29th and in Spokane, Washington on June 5th in Ethan's honor.  We would love for you to join us. If walking with us isn't an option due to living in a different state,  I encourage you to find a walk in your area.  Meet new people, those living with CF, hear their struggles and triumphs and get some exercise.  What have you got to lose?

I've made it easy for you.  Just click the link below to find a walk, register for a walk or read about GREAT STRIDES!
http://www.cff.org/GREAT_STRIDES/


 


Sunday, January 17, 2010



Kadence started her Tiny Tumblers class yesterday.  Who knew it was going to be such a work out for mom?  Phew...I was exhausted and the class was only 45 minutes long.  It sure was cute and she was super excited just to jump and do summer-salts (not so gracefully), swing around the bar although she preferred to do pullups and such.  It's a 6 week course so we'll be going every Saturday until the week before I'm due....yikes.  I'll be sure to get plenty of my own exercise while there also.


Thursday, January 14, 2010



I Tri...to inspire those around me. to prove that I am still young. for variety. to go faster. to be a role model for my children. because I can. to have my cake and eat it too. to hurt but feel no pain. to be my best. to work hard. to finish. to push myself. to overcome my fears. to be with my friends. so that I can wear a bathing suit. because it makes me happy. to get out of the house. for my family. to appreciate what I have. to smile. to be strong...for Myself. ~whooha gear

Do you Tri?

check it out...

www.sunsetracing.com 

This year I'll be doing my first triathlon.

JOIN ME...I'll see you on the race course!

 

Wednesday, January 13, 2010



As my due date approaches, I find myself  thinking more and more about this little booger!  My nephew Ethan who passed this last March.  These are HIS footsie's in my brother and sister-in-law hands.  I just LOVE this picture.  So much so that I had it blown up and am getting it custom framed to hang in Kady's new big girl room.  The words, "There is no footprint too small that it cannot leave an imprint on this world" are SO true.  I know this to be true because of Ethan.  He made a HUGE imprint on this world in the lives of all those who knew him.


Tuesday, January 12, 2010

We have our first model in the house.  Trust me this is not becoming a "thing."  One of my girlfriends recently became the proud new owner of Wild Child Boutique here in Las Vegas.   She asked if Kadence would be part of a photo shoot along with 5 other kids of all ranges, most of them her friends.  It was the cutest thing ever.  Coordinating 6 children in a shot can be quite complex and attention spans are short so there will be more shoots to come, being we only did an hour and a half this time.  Of course half the shots Kady has her thumb in her mouth tugging on her ear but the few good shots of her, were darn cute from what I heard.  I can't wait to see how they turned out.  I'll pass them on when I get them.  My girlfriend also has a maternity line @ Wild Child Boutique so naturally being the only pregnant lady there she asked me to do some shots too.  We didn't do many because she was missing complete outfits so I'm sure I'll be taking some more also.  This is not something that comes naturally to me but it's kind of fun trying.

 

Monday, January 11, 2010

Kady Update

I am seriously procrastinating starting Kady's  liquid diet again.  I probably shouldn't be avoiding it like the plague since we have so much happening in 6weeks but MAN....Ugh!!  Dom and I have a hard time talking about with one another.  It's a touchy subject.  Necessary, but touchy.  Neither one of us want to try it again but I know and feel it's worth one more try.  I am absolutely putting off until tomorrow what I should get done today.  And I'M OKAY WITH THAT!  

Maybe we'll start the liquid diet tomorrow!  Ha..................


BLAH!!!



Sunday, January 10, 2010



Patience is something I've seemed to have lost over the last 8 months.  Patience is not easily come by for the majority of human beings.  Patience is learned, self-taught, gets easier with time and age.  I'm at a point right now, I'm struggling with  it.  Taking an extra breath when I begin to feel frustrated and reminding myself that I am and am capable of being a patient person (even 8months pregnant) seems to help just a bit.  Let's just hope that it helps a bit for my daughter and my husband as well.  
"Learn the art of patience. Apply discipline to your thoughts when they become anxious over the outcome of a goal.  
Impatience breeds anxiety, fear, discouragement and failure. 
Patience creates confidence, decisiveness, and a rational outlook, which eventually leads to success."
 ~Brian Adams
.......................................................................

It is better to be patient, than it is to become one.

All human wisdom is summed up in two words: wait and hope.

Patience is waiting. Not passively waiting. That is laziness. But to keep going
when the going is hard and slow - that is patience.

Never run after a bus or a man. There will always be another one.

The secret of patience is doing something else in the meanwhile.

Patience is good only when it is the shortest way to a good end;
otherwise, impatience is better.

Hope is patience with the lamp lit.

Acquaintance without patience is like a candle with no light.

Patience can conquer destiny.
~unknown


Saturday, January 9, 2010

Good news has FINALLY come our way!!  There is a light at the end of the tunnel and we can see it...barely, but it's there =o)

Thursday I started a new TAO project that I work on from home whenever I get the time.  It's no stress and the extra money is always a bonus.  Tonight, Dom starts his first night of work.  Since racing season ended back in September, he has been searching for another bar tending gig.  With the economy the way that it is, he's had NO luck until now.  Even with all of his experience and gaming following.  To say the least, it has been a rough winter for us.  But, with the help of his new job, me working a bit on the side for the next 2months (until I have this baby) and race season gearing up again in March, which is right around the corner, we are able to breathe a little easier. THANK YOU God, it couldn't have come at a better time!  Well....really it could have, but who's complaining?

Wednesday, January 6, 2010

 

Meet our nephew Alexander.....




This year is a big year for Alexander....he graduates high school and shortly after will be heading to college.   Just before the holidays he was accepted to Purdue!!  Although this is the first of MANY more acceptance letters to come, I'm sure, and probably not the college of his choice, It's still pretty EXCITING!! 


WE ARE PROUD OF YOU ALEXANDER!!
Keep up the hard work and make the most of the rest of your Senior year.



Monday, January 4, 2010

Kady Update

Before the holidays we were attempting a liquid diet only for Kady...water, and "special" formula.  When she got sick two weeks before Christmas and completely boycott the liquid diet, only 4 days into it,  we decided to feed her and try again in a few days.  We noticed at that point she didn't want anything to do with her Rice Milk either which she's been on and been a huge fan of for almost a year now.  I called her Allergist and he insisted we stick with the liquid diet and offered us samples of a different brand of "special" formula.  After telling him about her dislike for any form of milk (rice or formula) he insisted we put her no a restricted diet meaning, chicken, beef, turkey and vegetables only.  That doesn't sound bad although she has become an extremely picky eater over the year.  The only way we've gotten her to eat those things in the past is by cooking it with something or in some type of marinade making it more tasty for her.  This restricted diet would not allow us to do that.  Not knowing what to do, we decided to wait until after the holidays to do anything and here we are.  FINALLY,  after repeated attempts over the past few weeks to get her drinking her rice milk again, she is!!  Step 1 accomplished.  Some time with in the next few days we may give this liquid diet another go.  There really seems to be no other options at this point so it's important it works this time.  Lord help us!!

Friday, January 1, 2010

New Year's Resolutions



"40 to 45% of American adult make one or more resolutions each year.
Among the top new years resolutions are resolutions about weight loss, exercise, and stopping to smoke. Also popular are resolutions dealing with better money management / debt reduction."



What I don't understand is why people make resolutions only once a year??  Although research shows that making resolutions is useful and people who explicitly make them are 10 times more likely to attain their goals than people who don't, New Year's resolutions wane after the first month, and only 20% maintain the resolutions past Valentine's Day.  If you set the bar too high you may be setting yourself up for failure.  My belief is that small attainable resolutions should be made all throughout the year. 


Perhaps it is time to try a NEW approach. Rather than look at self-improvement, it may be better to look outward and try to improve the lives of others. This will have the affect of changing one's own life at the same time.  Volunteering not only has a positive effect on the volunteer, it can also open doors to employment and is an excellent resume builder.  Making the world a better place starts at home and in the local community. Trying to lose the last 5 pounds as a New Year's resolution pales in comparison to what can be gained from volunteering time and energy to a cause close to one's heart.


Thursday, December 31, 2009

 I remember when the year 2010 seemed light years away.  It's hard to believe that it's already here.

Well, I'm looking forward to a new year.  Seems like each year when I think I've reached a comfortable place, it ends up teaching me some valuable lessons...I grow, reflect and take it all in.  2009 was no different.  I lived, I learned and I felt continually blessed...not with material things, but the things that matter.  Thank you Lord.  I could list all the lessons learned, blessings felt and such.  But the sum of all of these is simply TRUST and FAITH.  Trust what I already KNOW.  TRUST that HE is telling me quietly, that I just have to have FAITHListen to that small still voice.   


I wanted to make some pretty significant changes for 2009.  Some changes that I should have made sooner.  Remember that small still voice...it was there...for months.  I didn't listen for a while, I ignored it...thought I had it under control.  But it was constant.  Telling me...reminding me...whispering softly.  So I did...make some changes.  And some things were out of my control.  And that's okay.  But every wonderful thing and scary thing and decision made in 2009 made me wiser, stronger, and more FAITHFUL.

The truth is, I LIKE change, I like the excitement that comes with a new adventure...the possibilites of where it might take me.  I love a challenge.  I love a CONTROL F5...or a REFRESH.  Be it a new year, putting a different spin on something old or just a new direction.  I'm not afraid to jump in...if only I have one thread of FAITH to hold onto.  I know it will be okay.  So many times I've repeated my NEW mantra, "variety is the spice of life."   I am a dreamer, an optimist though I do not believe in luck...at all.  I believe that GOD has a plan and a purpose.  That's why I'm okay with whatever comes my way.  I know that it is to teach me, guide me and keep me in line with HIS plan.  It doesn't mean life will be a breeze.   It just means that I think I can handle it...with HIM.  All things are possible to him that believe. 


So...here we are...
As the sun sets on the west in 2009 and the warm sunlight of 2010 rises in the east, I'm home with my husband and our daughter, getting ready to build a fort in the living room, eat popcorn and watch Snow White.  There is nowhere else in the world I'd rather be.  I'm looking forward to wonderful exciting things to unfold in this NEW YEAR!!!  Anything is possible!   What I look forward to the most is spending another twelve amazing months making new memories with these two lovies and our new lovie to come this February...

Monday, December 28, 2009


"The best gift at Xmas is easy to see
Its not wrapped in paper or under the tree
Cos' the best gift at Xmas and all the year through
Is having a child as special as you!"
~unkown

 

Merry Christmas sweet Kadence Shiree



Sunday, December 27, 2009

What a great Holiday season we had spent with friends and family!!  It went by so fast it's hard to believe it's over.  We spent a wonderful week with Dominic's parents.  It was very relaxing for me to have them here doing all the cooking, cleaning and entertaining.  Although, Kady was the one keeping us all entertained.  The house feels a little empty without them here.

We are really looking forward to the next couple of months.  They will be busy....  Tomorrow a friend of ours will be home from Iraq, Dom will be starting a new job, New Year's Eve, maternity photo shoot, baby shower, Kadence's 2nd birthday, Valentine's,  my sister and mom will be visiting and of course the big day itself....Zoe's birth day!  I'm hoping they will also go by fast.  I really can't wait until I'm not pregnant anymore but mostly I can't WAIT to meet her.  At some point we will have to try this liquid diet again for Kady....bah humbug!  Not sure where, how or when to fit that in.

I hope you all had a great Christmas as well.

~~Peace and Love~~

Saturday, December 19, 2009

Thursday, December 17, 2009

Tuesday, December 15, 2009




Interesting night in the neighborhood last night.  I came home to road closures surrounding our gated community and inside the gates they had half the neighborhood blocked off.  The street our house was on was the only street open.  There were cop cars everywhere and a police helicopter with spotlight flying overhead.  I was nervous that they were looking for someone of course so I was a bit on the edgy side.  Upon entering my house, I quickly set the alarm and started checking the door and window locks.  All of the sudden, out of nowhere my house alarm goes off saying "garage door open."  Holding Kadence I must have jumped 10 feet in the air.  Our 3rd garage door is on the opposite side of the house from the garage that I parked and walked in.  I hadn't checked that side of the house yet so now my nerves were rattled.  I considered running outside and up the street to ask one of the officers what was going on or getting in the car and leaving but instead I grabbed a kitchen knife and with Kady in one hand, knife in another I went through the house room by room checking under beds, in closets and behind shower curtains leaving every light on in the house.  Dom was at a job interview and his phone was off.  I watched carefully out the front window to see a fire truck pull up, four K-9 units, more squad cars and people evacuating their homes.   It was long after Dom called me to say he was on his way home.  I figured he could find out what was going on on his way in and we'd decide together if we needed to leave or not.  After all, no one knocked on my door to tell me I needed to and they all watched me pull in my driveway.  I was a little nervous when Dom had called back saying even more roads had been blocked off and he wasn't sure if he'd be able to get home.  Being home alone, 7months pregnant with a 2yr old and not knowing what was going on outside left me with a less than warm and fuzzy feeling inside.



Apparently, there was a domestic dispute in a house around the corner from ours between a mother and her son.  The son works at a construction site where explosive are used.  He had been stock piling blasting caps and came home with explosive material and detonators.  When the mom called the cops, the son took off on foot with a backpack.  The search for the son and of the home began.

So, Dom comes home to tell me that although our street was the only one in the neighborhood not blocked off they made him park elsewhere and walk up.  He then tells me that it's a bomb scare in the neighborhood and 20 of the 35 homes have been evacuated but we are in the safe zone.  He also pulled in behind two unmarked bomb trucks and had the perverse pleasure of watching a squad car back up into a boulder in the neighbors front yard.  Kind of funny.  So if you were watching the news that night, you may have caught a glimpse of our house.  It was an entertaining evening to say the least.  As of this morning they are still looking for the son but everything in the neighborhood seems quiet and back to normal.



Sunday, December 13, 2009

Kady Update



Throwing in the towel.  If she's not going to drink the formula, and we can't force her to, then she's got to eat.  So, we are now happy and eating.  Have been for 2 days now.  I plan on calling the doctor tomorrow and see what he has to say.  If we can try another way, we ought to pursue it.  If we have to revisit this liquid diet in a couple months then we will.  I'll let you know what he says.


Saturday, December 12, 2009



What a great day today!  I have not worked this hard since I waited tables back in college.

Last Saturday, my girlfriend Kelly and I went shopping with the Elk's and the Muscular Dystrophy Association (MDA) to buy Christmas gifts for kids with Muscular Dystrophy and their families.  Our budget was around $2,500 although we spent a total of $2,800.  Each kid received 2 to 3 gifts.

Today was the luncheon for the kids where we served them food, did arts and crafts with them and handed out all the gifts.  Santa arrived in a fire truck which was a hit.  It was so nice to cater to those with special needs and to give their families a break for one afternoon by allowing us to serve and play with them.  You should have seen the smiles.  It was very touching.


The shopping crew and gifts.
To Do: 7hrs of wrapping


 
Kelly and I

"One is not born into the world to do everything but to do something."
   ~ Henry David Thoreau




I've always wanted to volunteer my time to help others but other than serving Thanksgiving dinner to the homeless Vets, I never made the time or effort to do more until last year.  It all started when I lost my nephew to Cystic Fibrosis and found out that my daughter and I are both carriers of the gene as well.  I was committed to help raise money and awareness to make those living with CF have a more comfortable life on here on earth.  It has been a truly humbling experience.   I'm constantly looking for the next opportunity.




Friday, December 11, 2009

Kady Update



Eh...well, Kadence has completely boycott the formula for 2days now.  I'm not really sure what to do at this point. She's been sick also so I'm wondering if she doesn't want to drink the formula because she doesn't feel well.  We may end up feeding her tonight and try starting over again tomorrow.  I'm just not comfortable with her not getting any nutrients for 2 days.  We are open for suggestions.



Thursday, December 10, 2009

Wednesday, December 9, 2009


Tis' the Season....and I am so not ready!


There is so much to do and never enough time.  We have purchased a total of ONE gift so far...Oy Vey!  It doesn't help that I've been down with a cold not to mention how exhausting it is to be 7 months pregnant and anemic.  It's good that there is so much to look forward to.  There is still Christmas shopping to be done and Christmas cards to be sent out.  There is lots of baking and cooking to be done in the near future as well.  My in-laws will be coming in about 10 days from Myrtle Beach.  We are really looking forward to having them.  They will hardly be able to stand themselves when they see Kadence.  We are looking forward to spending time with friends and joining in different Christmas Party festivities.  If I could only find a little more mojo to get the ball rolling, we'd be set.



Tuesday, December 8, 2009

Kady Update

Yesterday went well.  She asked for food in the evening around 5, slept through the night and asked again for food this morning.  It wasn't too bad though.  If I can distract her and keep her busy, she seems to forget. She is a bit cranky and you can tell has less energy throughout the day.

Day 2 off to a good start!

Monday, December 7, 2009

Kady Update

We have finally weened Kadence IN to her formula.  It's been a long week to get here but we are here.  Dominic is still not sure we should go through with this but I'm determined to at least give it a try.  For the past 6 days I've given her less and less rice milk in her formula and she's only been eating dinner and a banana and fries here and there =o)  Yesterday, she actually drank 4 whole cups of the formula with no rice milk and slept through the night without dinner, so today will be day 1 with no food at all.  I feel better about it now and not like I'm starving or depriving her...too much.  Kady does still ask for food and snacks but I'm confident within another week that will fade.  We still feel uncomfortable eating in front of her but that too shall pass.  Hopefully her diarrhea will completely go away within 3weeks.  If it's not gone by the end of 4weeks, I will most likely discontinue the process and tell the doctors it's not working and to find another way. 

At the end of 6-8weeks her diet will consist of mostly formula.  At that time we will re-introduce 1 food at a time back into her diet and see if her symptoms return.  I imagine it will be about 6 months before she has enough variety back in her diet and we can completely ditch the formula.  That day will be a HUGE relief on our pocketbook.  Hopefully there will be enough variety by the time her 2nd birthday comes around January 31st that I'll be able to give her a banana or PB&J (her favorites) with a candle in it =o)

Current Weight: 24lbs....this will be interesting.

Thank goodness she was a puffy baby and could afford to loose some weight.

Saturday, December 5, 2009




Putting the munchkin to bed is so much fun!!  It takes about 10 minutes because we have so many things we need to say goodnight to.  It usually goes like this:


"Nigh Night Daddy. Lub you"
"Nigh Night Mommy. Lub you"
"Nigh Night Doggies"
"Nigh Night Tree"
"Nigh Night Lights"
"Nigh Night Books"


There's usually one or two other random things in there as well and she does it all with her thumb in her mouth.  She usually waves to you after you've put her down and says "bye, bye.  See you." 

Being a parent is wonderful gift!!




Friday, December 4, 2009






 Dominic and I have AMAZING families who have supported us and helped us through many difficult times.  Without their love and support, life as we know it would feel empty and be difficult to bear.

To:  Mom and Dad Murray, Mom and Dad Guinto, Dawn, Jared, Alexander, Mandy, Chris, Kip, Tia, Riley, Ethan, Lance, Nicole and not to forget our wonderful Grandparents as well.

Thank you all for being you and loving us for us!


Wednesday, December 2, 2009

Kady Update

Can I take back November 27th's post??  Alright just kidding =o)  Two days down of our 6-8 week liquid diet.  I had a mini breakdown last night about it as my husband put our daughter to bed.  To starve a child for any reason at all just doesn't seem right especially when it's your own.  I also want to know what is wrong with her though and I'm feeling frustrated that the answers won't come easy!  She kept asking for hotdoggies (hotdogs), Mananas (bananas),  Cackers (crackers), Nummies (gummies), Cockcorn (popcorn)....Ugh!!!!  Dominic and I didn't eat dinner until 9 o'clock because it felt wrong to eat in front of her.  She had refused to drink water all day also because she was afraid it was the nasty formula.  By the time we put her to bed, she was already showing multiple signs of dehydration.  All of these things lead to my mini breakdown.  I cried and cried telling Dom I didn't think I was going to be able to do this. If I couldn't make it through one day how was I to manage 6 to 8 weeks?  It was at that moment, 9:30pm, I went to her room, picked her up out of her crib waking her up and fed her a whole PB&J.  Dominic was actually making the sandwich as I brought her out into the kitchen.  Great minds really do think alike!  Oh it was pure joy.  Finally I would be able to sleep.

Dominic was never crazy about this whole thing and Neither was I.  There was a moment I thought he would fly out of his chair and choke slam the Doctor as he told us about this next step.  We like this Doctor from what we've seen so far but this step in the process seems so extreme.

Today I didn't feed her all day. She did a little bit better although she kept saying she was sad.  Uh....heartbreaking!!  She did eat another PB&J before bed tonight but that was it.  I decided it was best to feed her something until I could figure out how to get her to drink the formula.  I started mixing it 1/2 rice milk and 1/2 formula and she drank 4 sippy cups full throughout the day...progress!  It feels a little less like starving your child when you know they are getting some of the nutrients they need.  So we are slowly working our way up to no PB&J's and 4 sippy cups of formula per day.

If you are at all interested in reading up on her condition click the link below.  It is interesting just because it is a rare kind of disease, there is no protocol for treatment and they aren't sure of long term affects, if you can grow out of it etc.


What we do know at this point is she...
1. is lactose intolerant
2. is allergic to Eggs
3. has Eosinophilic Esophogitis (read above link)
4. has Colitis
5. tested negative for Celiac Disease

Hopefully we'll know a lot more at the end of 8 weeks, hoping for 6, praying for 4!

Tuesday, December 1, 2009

Kady Update

Is it really December already??  I know I've had my tree up for 2 weeks now but it still feels like it came so quick.

Today we were back at the allergist for Kadence.  Count so far:  1 year, 1 colonoscopy, 1 endoscopy, 2 Gastrointestinal Dr's, 2 Allergists, 2 rounds of allergy testing, 4x stool sampling, 5 rounds of bloodwork and.....no answer....yet!  Ugh!!!  Today will start day 1 of a liquid diet only for Kady. By liquid diet I mean ONLY water and this special formula called Elecare.  We will do this for the next 6-8 weeks.  The fun part, besides all the other fun parts to this nightmare, is how costly this "special" formula is.  My nephew Ethan was on this formula also and he went through $900/month.  Granted he had a lot of feeding tube issues, leaks and spills adding to the cost and waste.  I imagine it will run us about $600-$800/month if she drinks what I feel she needs to drink.  That's only if we can get her to start drinking it at all.  So far, she's NOT a fan and I don't blame her.  It doesn't smell appealing.  And, let me tell you something...Vanilla does not mask the smell and taste of crap!  Poor kid. 

So, here we are.  Me personally, I'm feeling a little defeated.  Staying positive as much as I can but I'm super frustrated.  I wish there was a simple fix for this.


I'll keep you posted.  All I can say is that this BETTER work!