Kady Update

We went back to Kady's G.I. doctor last week for a follow up.  Another Endoscopy has been scheduled for the 28th of April.  At this visit, he told us that Kadence DOES NOT have Eosinophilic Esophagitus (EE) after all....Who knew!!  Although this is good news, I find it to be frustrating at the same time.  I personally feel as if we are back to square one.  Why we were not told this 9-10months ago...beats me.  Quite frankly I'm too tired and frustrated to argue that fact now.  I want answers. The misunderstanding with the EE diagnosis (more like a non-communication to us on the doctors part) is that pathology at Summerlin Hospital here in Las Vegas said that she DID have EE based on the number of Eosinophils found throughout her guts.  Biopsies and lab work was also sent to Cincinnati Childrens Hospital (the leading hospital in EE research from what we are told) and their pathology reports said she DOES NOT have EE or stated that she had rare amounts of Eosinophils as in small or minimal.  The upcoming Endoscopy will tell us if her Eosinophil counts have increased, decreased or gone away completely.  The biopsies from this Endoscopy will go strait to Cincinnati for results.  I have no idea yet what any of this means or where we go from there.  Hopefully it will get us one step closer to where we need to be.

For now, we are starting her on more meds.  This one to treat the diarrhea specifically until we know what is causing it.  At least this way we can move forward with life...ie: potty training.

On a positive note...ALL tests for Cystic Fibrosis came back NEGATIVE!!!!!